Attitudes About Genetic Testing for Kidney Disease
Genetic testing for non-diabetic nephropathy (apolipoprotein L1 gene): Attitudes of African American transplant patients, living donors, and non-transplant patients/non-donors
This study is looking to learn more about African American’s attitudes towards genetic testing for kidney transplant patients and living kidney donors. We are trying to find out how people in this group feel about a genetic test that could give doctors a better idea of a person’s risk for end-stage renal disease. The study has two phases. Phase 1: We will develop a survey about perceptions of genetic testing for kidney disease for transplantation and living donation. Phase 2: We will survey 100 adult African American kidney transplant candidates/recipients, 100 adult African American potential/former living kidney donors, and 100 adult African American non-transplant patients/non-donors about genetic testing for kidney disease in the context of transplantation and living donation. This
1. To characterize the APOL1 genetic testing willingness and attitudes of African American transplant patients, living kidney donors, and non-patients.
2. To examine the relationship between sociodemographic characteristics and APOL1 genetic testing willingness and attitudes.
Adults ages 18+.
Patients in the groups described above will be identified to participate by the team at ECMC.
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