Survey Study for Parents
Protocol: STUDY00004266
Full Title
A Comparison of Caregiver Burden Among Parents of Children With Cerebral Palsy and Tourette Syndrome
Description
Are you the parent of a child who was diagnosed with Tourette Syndrome, or Cerebral Palsy or the parent of a child (children) with no known disability? We are hoping to learn more about the burdens caregivers face caring for children with disabilities and how that is different from the burdens of parents with children without a disability.

You will complete an online survey that takes about 20 minutes to complete. Your participation can help others to better understand caregiver burden which can help others parent in the future. This study takes place entirely online.

Technical Description

Caregiving parents of children with CP or TS along with parents of children without disabilities will be recruited from online support groups to complete the Caregiver Burden Inventory (CBI), The Caregiver Self-Assessment Questionnaire (CSAQ), and the Inclusion of Other in the Self (IOS) scale online. Data will be analyzed using three 3-way ANOVAs to look for main and interaction effects. Factors of (1) diagnosis; (2) Caregiver status (primary versus secondary); (3) Caregiver gender role will be used for each of the three ANOVAs (CBI; CSAQ; IOS scale).
Compensation: No
Eligibility
Adult parents/caregivers ages 18+.
Your child is ages 5-12.
Your child has been diagnosed with Cerebral Palsy or with Tourette Syndrome *OR* your child (children) have no known disabilities.
The child must live with the primary and/or secondary caregiver.
Age Group: Adults
Principal Investigator: JANICE TONA
Contact(s)
JANICE TONA
tona@buffalo.edu
+1 716-829-6741
Want to Learn More?
Enrollment Update

Due to COVID-19, new enrollment in research studies will be greatly limited. If you are interested in a study, there may be a longer waiting period to receive a response to your inquiry. View the guidance for research participants for additional information.

Let us know how the study team can reach you. If you do not hear back within 2 business days, reach out to the study team directly at the contact information above or email ctsiresearch@buffalo.edu and someone will assist you.