Type 1 Diabetes Questionnaire for Children and Young Adults
Protocol: STUDY00004050
Full Title
Measuring Diabetes Distress Among Adolescents with Type 1 Diabetes Mellitus Using the PAID-T vs. PHQ-9 Survey
This study enrolls children and young adults who have Type 1 diabetes. Young adults with Type 1 diabetes experience stress related to their disease. The purpose of this study is to compare two different surveys for learning about stress related to having Type 1 diabetes.

You will be in this research study for one clinic visit. You will be asked to complete the PHQ-9 survey as you usually do at the clinic visit. You will also be asked to complete the PAID-T survey (Problem Areas in Diabetes – Teen Version). Visit takes place at Conventus, 1001 Main Street, Buffalo, NY 14203.

Technical Description

Type 1 diabetes is one of the most common chronic diseases among adolescents, caused by destruction of the insulin-producing beta cells in the pancreas. Chronic diseases are associated with stressors related to disease burden. For type 1 diabetics, stressors are related to fear of high or low blood sugars, monitoring their blood glucose multiple times a day, and maintaining a healthy diet and exercise regimen. Individuals with Type 1 diabetes also worry about the effect that the disease will have on their future health. Adolescents are already struggling with the transition from childhood to adulthood, searching to find their identity and navigate peer pressure, with the added pressure of managing a chronic disease. The PHQ9:Modified for Teens is a commonly used and validated tool used to screen for depression and anxiety as well as risk for self-harm behaviors. This took is currently used in the UBMD Pediatric Diabetes clinics to evaluate adolescents for mood disorders. However, this tool may not be thorough enough to evaluate other aspects of diabetes distress in the clinic setting. We plan to administer the PAID-T survey to evaluate specifically for diabetes related distress and compare the findings from both tools to assess the relationship between mood disorders, diabetes distress, and glycemic control.
Compensation: No
Children ages 13-17 and adults ages 18-19.
Diagnosis of Type 1 diabetes for more than 1 year.
Age Group: Both Adults and Children
Principal Investigator: LUCY MASTRANDREA
+1 716-323-0170
Want to Learn More?
Let us know how the study team can reach you. If you do not hear back within 2 business days, reach out to the study team directly at the contact information above or email ctsiresearch@buffalo.edu and someone will assist you.