The purpose of the study is to see how best to educate people about kidney transplantation and donation. The ECMC kidney patient will get an email invitation to participate. Participant will then fill out a few online surveys and watch several short videos about kidney transplantation / donation for about an hour. Participant will be paid up to $200. Read More
Advanced kidney failure
This study enrolls children and young adults with congenital anomalies of the kidney and urinary tract (CAKUT). The purpose of the study is to learn which gene mutation(s) may be responsible for this condition and to eventually find a gene therapy to treat this condition. Read More
Children and young adults ages 0-21 years old with CAKUT (congenital anomalies of the kidney and urinary tract) seen at Oshei Children's Hospital
Patient's family member without CAKUT.
This study enrolls adults who are potential kidney transplant patients. The purpose of this study is to better understand the educational strategies that work best to help potential kidney transplant recipients learn about aspects of kidney transplantation, such as the kidney waitlist. Read More
Adults ages 18+
Kidney transplant candidates and recipients with chronic kidney disease (GFR less than 20)
This study enrolls people with end stage renal disease. The purpose of this study is to learn from people who are on dialysis how best to to improve communication with their healthcare providers. Read More
This study enrolls people who are scheduled to have a kidney transplant. The purpose of this study is to learn more about the association between bacteria in a person's body and how well a transplant recipient does after their transplant. Read More
Adults ages 18+
Kidney transplant recipient
No previous transplant
No history of GI malignancy
No previous immunosuppression
We are seeking potential and past kidney donors and recipients for a research study. The purpose of the study is to make educational videos to help patients understand living kidney donation and transplantation. Read More
Age 18+, living kidney donor, potential living donor, kidney transplant recipient, caregivers, people waiting for kidney transplants, or people or being evaluated to get a kidney transplant.
This study gives education about kidney paired donation (KPD) for people who are interested in living kidney donation to a person they know. The purpose of this study is to learn the best way to educate people about kidney paired donation (KPD), sometimes called kidney exchanges. Read More
Adults ages 18+.
Speak English or Spanish.
Have completed the initial living donation health screening.
This study is looking to learn more about African American’s attitudes towards genetic testing for kidney transplant patients and living kidney donors. We are trying to find out how people in this group feel about a genetic test that could give doctors a better idea of a person’s risk for end-stage renal disease. The study has two phases. Phase 1: We will develop a survey about perceptions of genetic testing for kidney disease for transplantation and living donation. Phase 2: We will survey 100 adult African American kidney transplant candidates/recipients, 100 adult African American potential/former living kidney donors, and 100 adult African American non-transplant patients/non-donors about genetic testing for kidney disease in the context of transplantation and living donation. This Read More
Adults ages 18+.
Patients in the groups described above will be identified to participate by the team at ECMC.